This is a really good one-stop-shop link of ways to help the victims of the Victorian bushfires


Bushfire - Other Ways to Give - ourcommunity.com.au

*This* is why.


The man up the road is on fire | Herald Sun

CAROL Kane desperately searched evacuation centres in Bendigo for her husband, confident he had been rescued.

But Kevin “Mick” Kane, ill and housebound, did not make it out of his home alive.

Ms Kane began looking for Mick after fire ripped through the suburb of Long Gully, obliterating their home.

Neighbour Jenny Carolan said she spoke to Ms Kane on Saturday night at the Eaglehawk Leisure Centre, one of Bendigo’s evacuation points.

Ms Kane believed someone had saved her ill husband, who relied on a walking stick and a motorised scooter.

“I said, ‘Where is Mick?’ and Carol said, ‘We can’t find him’. She was pretty calm, she thought he’d been evacuated,” Ms Carolan said.

Mr Kane died alone in his Daniel St home as fire ripped through Long Gully after 5.30pm Saturday.



And, yes, there are ‘people’ who are asking that question. From the comfort of their safe homes.

ETA - Crap, the link from Karen’s post to the Red Cross hasn’t copied - please click through to her post.

ETA again - it takes a while to get through to the Red Cross via phone, but be patient.

For anyone who doesn’t already know, Victoria is in the grips of one of the worst bush fire tragedies in Australia’s history. One of the most appalling things about this is that many of these fires WERE DELIBERATELY LIT. The rest of this post is from karenhealey she says it better than I could and has a fantastic way for people to help from all over the world. I’m about to donate money now.

http://karenhealey.livejournal.com/750660.html

As predicted, yesterday’s horrific heat, at the end of a 34 day dry spell, resulted in fires all over south-eastern Australia.

But the fires were very fast, and very furious, and in addition to widespread devastation have utterly destroyed at least two towns: Marysville and Kinglake. At least 84 people are reported dead, and that number is expected to rise.

I have been through Kinglake several times. I’ve stayed at a home near there (at last check the inhabitants were fine), walked through the beautiful bush, helped clear the scrub. That’s land I’ve worked, and now it’s a sooty wasteland.

All those people; all those homes; all that life. It’s one of the worst natural disasters in Australia’s colonial recorded history.

Except that it’s not entirely natural. Criminologists estimate that about half of Australia’s fires are set by humans. Arsonists have been spotted helping the fires spread or relighting fires that have been controlled or extinguished. I would cheerfully strangle each one of those murderous assholes, but, you know, I can’t, so rather than restrict myself to black curses, I thought I would do something more productive.

I’m hereby announcing the Fuck You Firebugs Donation Drive. I’m supposed to be getting an advance cheque in the very near future, so I’m in a position to do this: I’ll match, dollar for dollar (up to five hundred dollars) every donation to the Australian Red Cross Victorian Bushfires Appeal that you make.

Because, seriously, fuck those guys.

How it works:

1) You go to the Victorian Bushfires Appeal website and make a donation.

2) You come back to this post (http://karenhealey.livejournal.com/750660.html) and tell me how much you donated. (All comments are screened; I’m the only one who’ll see your name and the donation amount, unless you request otherwise).

3) I announce donation totals as we go, and make my contribution.

4) BAM! Your donation just doubled.

5) Fuck you, firebugs!

Feel free to spread the word, even if you can’t afford to make a contribution yourself. I have great faith in the power of dispersed communities to make a real difference. It’s my view that the only answer to people being evil is people being good - compassionate, generous, and supportive in the face of atrocity beyond comprehension.

http://news.ninemsn.com.au/article.aspx?id=569510

Beijing guide labels disabled ‘unsocial’

17:01 AEST Mon May 26 2008

1 hour 20 minutes ago


Disabled people can be unsocial, stubborn, controlling, defensive and have a strong sense of inferiority, according to an official Beijing Olympics guide set to spark outrage in the disabled community.

The Olympic manual for volunteers in Beijing is peppered with patronising comments, noting for example that physically disabled people are “often” mentally healthy.

Volunteers at the Olympics and Paralympics are instructed not to call Paralympians or disabled spectators “crippled” or “lame”, even if they are “just joking”.

The document, which indicates the Chinese hosts could use a swift education in political correctness, says the optically disabled “seldom show strong emotions”.

“Physically disabled people are often mentally healthy,” adds a copy of the guide, obtained by AAP.

“They show no differences in sensation, reaction, memorisation and thinking mechanism from other people, but they might have unusual personalities because of disfigurement and disability.

”For example, some physically disabled are isolated, unsocial, and introspective; they usually do not volunteer to contact people.

“They can be stubborn and controlling; they may be sensitive and struggle with trust issues.

”Sometimes they are overly protective of themselves, especially when they are called crippled or paralysed.“

Volunteers are instructed never to ”stare at their disfigurement“.

”A patronising or condescending attitude will be easily sensed by them, even for a brain damaged patient (though he cannot control his limbs, he is able to see and understand like other people).

“Like most, he can read your body language,” says the 2008 volunteer guide.

“Show respect when you talk with them.

”Do not use cripple or lame, even if you are just joking.

“Though life has handed many difficulties to them, disabled people are often independent and self-reliant.

”Volunteers should offer assistance on a basis of equality and mutual respect...

“Disabled people can be defensive and have a strong sense of inferiority.”

China’s treatment of the disabled has in the past angered swimming great Dawn Fraser, who cited it as one reason she won’t be going to Beijing.

She said in April she had seen disabled athletes spat on in the streets in Beijing during university games in the mid-1990s.

Volunteers at the Beijing Games are also given some very specific instructions on how to sit, stand, walk and talk properly.

A handshake should last from three to five seconds, the manual states, and the body and arm should form a 60 degree angle.

An “appropriate” personal space on social occasions is from 1.2 to 3.6 metres, but for work colleagues it is 1.2 to 2.1 metres, and 2.1 to 3.6 metres is good for strangers.

When sitting, volunteers are told to avoid hooking the chair with one foot (“low-class and boorish”), stretching out their legs (“rough”), crossing the legs in a “4” shape (“cocky and impolite”) and continually changing positions (“underbred”).

When standing, the guide warns against shaking any part of the body (“careless”), putting two hands in pockets (“frivolous”), crossing both arms (“defensive”), standing with two arms or one arm akimbo (“offensive”) and standing with two legs crossed (“too easygoing”).

It says taking steps too large or too small looks “strained”, though it does not specify how large the step should be.

The Olympics run from August 8-24, while the Paralympics follow from September 6-17.

[This came through on an email list and I meant to post it ages ago - buuuut, you know.... It’s a bit pricey, $36 US, but looks worth it if the budget allows. According to the info on the website, it looks like it may also be available in other formats as well.]

Dissonant Disabilities: Women with Chronic Illnesses Explore Their Lives
Edited by Diane Driedger & Michelle Owen

Spring 2008 9780889614642

This much-needed collection of original articles invites the reader to
examine the key issues in the lives of women with chronic illnesses. The
authors explore how society reacts to women with chronic illness and how
women living with chronic illness cope with the uncertainty of their bodies
in a society that desires certainty. Additionally, issues surrounding women
with chronic illness in the workplace and the impact of chronic illness on
women’s relationships are sensitively considered.


Distinctive Features:

§ Presents incisive research on the subject from the perspective of women
who themselves live with chronic illness both physical and mental.

§ Discusses the shame, blame, and power imbalances in the family, work,
and educational lives of women with chronic illness.

§ Provides an important dimension of personal experience that demonstrates
that barriers in the women’s lives are primarily socially constructed.



“This collection addresses an under-researched and under-theorized academic
topic, combining the perspectives of critical disability studies and
feminist studies. Most importantly, it does so from the perspective of
women who themselves live with chronic illness. The scholarship is sound
and well researched, but also adds an important dimension of personal
experience that underlines the value of critical identity politics.”

—Pauline Greenhill, Women’s and Gender Studies, University of Winnipeg

“This is a strong and much-needed collection about issues that are
significant in the lives of women living with chronic illnesses. I like the
inclusion of physical, cognitive, visible, invisible, and contested
illnesses.”

—Sharon Dale Stone, Department of Sociology, Lakehead University



Diane Driedger is a PhD candidate in the faculty of education, University
of Manitoba. She is author of The Last Civil Rights Movement: Disabled
Peoples’ International and co-editor of two anthologies by women with
disabilities; she is also a published poet. Since 1980, Diane has been an
activist, researcher, administrator and author on the topic of people with
disabilities with a specific interest in the empowerment of disabled women.



Michelle Owen is Associate Professor of Sociology at the University of
Winnipeg. Her primary teaching, research interests and publications are
focused on gender, sexuality, family and disability. Most recently,
Michelle worked on two projects involving women with disabilities: a
longitudinal study of intimate partner violence, and a participatory action
research initiative investigating intersecting sites of violence in the
lives of girls and young women.

Table of Contents

Part One: Clashing Expectations

Water Wearing on a Stone: The Role of Shame in the Social Construction of
Chronic Illnesses
Charlotte Caron

The Complexities of Negotiating Power under Conditions of Chronic Illness
Mary Delaney and Sandra Bell

Crazy Talk: Dialogue between Two Young Women about Depression
Mandy Fraser and Jennifer Matwee

The Social Construction of Doubt: Women’s Accounts of Uncertainty and
Chronic Illness
Sheilagh Grills and Scott Grills



Part Two: Unpredictable Bodies

The Emergence of Body Image Dissatisfaction among Women in Singapore
Maho Isono

What’s Eating You? A Feminist’s Chronic Struggle with Anorexic Identity
Morgan Gresham

Listening to the Body: Women with Chronic Fatigue Syndrome, Fibromyalgia,
and Multiple Chemical Sensitivities Talk about Illness and the Body
Debra A. Swoboda

This Is Not Going to Control My Life: Young and Living with Fibromyalgia
Amy Chow


Part Three: Disturbing Work

The Personal Is Pedagogical/The Pedagogical Is Personal
Ruth Roach Pierson

There Always Seems to Be Excuses: A Grad Student’s Narrative of Autoimmunity
Julie Devaney

A Delicate Balance: Chronic Conditions and Workspace
Nancy E. Hansen

Part Four: Shifting Relationships

Chronic Non-malignant Pain: A Queer Woman’s Journey through Relationships
and Healing
Corinne Stevens

Working Together: Women with Musculoskeletal Illnesses Interacting with
Health Care Providers
S. Michelle Driedger, Carrie Sanders, Cindy Gallois, Maree Boyle, and Nancy
Santesso

Circle of Care: Transitioning through One Woman’s Experience of Breast
Cancer
Barbara A. Brown


Part Five: Traversing Dissonance

Recovery and Power: Living with Bipolar Disorder
J. Karen Reynolds

Living Well (with Cancer): Lessons Learned from Dragon-Boat Racers
Terry L. Mitchell, Franci Finkelstein, Eleanor Nielsen, and Christine
Yakiwchuk

Signalling Invisibility, Risking Careers? Caucusing as an SOS
Katherine Teghtsoonian and Pamela Moss

Notes from Bed: Learning from Chronic Illness
Susan Wendell


Visit our website! www.womenspress.ca

This is the number one of at least two posts today for my first contribution. Contrary to my usual Sunday activities (sleep, read, fiddle around on computer, do as little as possible), I have to go out for a few hours this afternoon, but I thought I would post some information about the two books I will be reading this week, just to whet your literary whistles. Actually reading and posting my thoughts will happen later on tonight.

I’m currently reading “Good Wives?” by Margaret Forster and “The Morning Gift” by Eva Ibbotson.

Amazon.co.uk Review of “Good Wives?”
http://www.amazon.co.uk/Good-Wives-Fanny-Jennie-1845-2001/dp/0099283778

“The question mark in the title of Margaret Forster’s triple biography and memoir, Good Wives?, betrays something of her ambivalence on the subject of matrimony. To deconstruct what a ”good“ wife might be, she explores the lives of a ”wife-of“ trio who were all married to prominent men (as is Forster, to writer and journalist Hunter Davies), making them good subjects, if hardly representative. Mary Livingstone proved a determinedly submissive wife to her missionary explorer husband, constantly uprooting and following him over Africa on an ox wagon. For Forster there are only cursory overlaps with her own experience; she dismisses Mary quite harshly, while pitying the grimness of her existence. Fanny, married to Robert Louis Stevenson, was a more determined soul. Together they sailed to the South Seas in the search for hospitable climates for his frail constitution, where she nursed him, kept house, and wrote a little herself. When he finally died in 1894, though, so did much of Fanny. Forster has more time and sympathy for a woman who had seen something of the world on her own terms, even if the vow ”in sickness and in health“ was to hold undue pertinence. Lastly, the purposeful, militant Jennie Lee, who eventually married politician Nye Bevan, provokes only admiring connection in Forster. Lee, an MP herself, saw marriage as a practical contract, though she loved and protected Bevan dearly. Children were out of the question: not only did she refuse to play mother, she disdained playing housekeeper or moll, and refused to sacrifice her own career.

The ”Reflections“ from Forster that follow each wifely portrait are easily the most interesting sections of this bracing, unindulgent book. In comparing her own marriage to those of her subjects, she reflects insightfully on universal themes of marital union, such as in-laws, (in)dependence, entertaining, careers, money, home and children, and concludes that if she were considering it today as a young woman, she would marry for children, but not for a husband. Perhaps Hunter Davies might consider writing Good Husbands?, as a companion partner to this relentlessly thoughtful, stimulating work of scholarship and experience. --David Vincent --This text refers to an out of print or unavailable edition of this title.”

Synopsis from Amazon.co.uk of “The Morning Gift”
http://www.amazon.co.uk/Morning-Gift-Eva-Ibbotson/dp/0330444999/ref=sr_1_1?ie=UTF8&s=books&qid=1205636351&sr=1-1

“Ruth lives in the beautiful city of Vienna and is wildly in love with Heini Radik, a brilliant young pianist. But her world is about to change forever. When Hitler’s forces invade Ruth’s family flees to London, but she is unable to get a passport. Quin, a young professor and friend of the family, visits Ruth and in an effort to bring her back to London, he offers a marriage of convenience. As Ruth throws herself into her London life, Quin begins to fall desperately in love with her. Things are further complicated by the arrival of Heini ...”

Click on the Sunday Salon image for more information about this project and other contributors.

and those who will come after.

And for those who fight when I can’t.

When you will not hear my pain
You cannot share my joy

When you will not acknowledge my hate
You cannot feel my love

When you will not allow my weakness
You cannot be supported by my strength

When you will not accept my difference
You cannot appreciate my beauty

When you will not hear me
That doesn’t mean I have nothing to say

When you do not value me
That does not mean I am not valuable

When you will not see me
That does not mean I don’t exist

Copyright Me, sometime prior to 2001, with lines added today.

For vassilisa and all my other fellow Linux-ers, check this out!

ETA: Just poked around to find out what distro it runs on - Xandros, which is apparently built on Debian. Looks nifty: http://www.xandros.com/products/home/home_edition.html

"Of all tyrannies a tyranny sincerely exercised for the good of its victims may be the most oppressive... but those who torment us for our own good will torment us without end for they do so with the approval of their own conscience...

Their very kindness stings with intolerable insult...

To be 'cured' against one's will and cured of states which we may not regard as disease is to be put on a level with those who have not yet reached the age of reason or those who never will; to be classed with infants, imbeciles, and domestic animals. But to be punished, however severely, because we have deserved it, because we 'ought to have known better', is to be treated as a human person made in God's image...

And when they are wicked the Humanitarian theory of punishment will put in their hands a finer instrument of tyranny than wickedness ever had before...

The new Nero will approach us with the silky manners of a doctor, and though all will be in fact as compulsory as the tunica molesta or Smithfield or Tyburn, all will go on within the unemotional therapeutic sphere where words like 'right' and 'wrong' or 'freedom' and 'slavery' are never heard...

Even if the treatment is painful, even if it is life-long, even if it is fatal, that will be only a regrettable accident; the intention was purely therapeutic...

But because they are 'treatment, not punishment, they can be criticized only by fellow-experts and on technical grounds, never by men as men and on grounds of justice...

But we ought long ago to have learned our lesson. We should be too old now to be deceived by those humane pretensions which have served to usher in every cruelty of the revolutionary period in which we live. These are the 'precious balms' which will 'break our heads'."
C. S. Lewis, "The Humanitarian Theory of Punishment"

I’m looking for internet resources on how PWDs can best work with PAs/Home Helps to make sure they get the support they need in a respectful and dignified manner. I really want resources on how to manage the relationship itself rather than specifics on hiring/firing as these are different depending on where one lives, and the info on that aspect isn’t as hard to find. Something I can pass onto other PWDs so they have some ideas/suggestions on paper to refer to, specifically for the organisation for WWD that I run.

Thanks!

X-posting a number of places

(And no, I haven't left tracking this info down till the last possible moment, what on earth makes you think I would do something like that, hmmm?... Aside from my well-known tendency to procrasinate... and the fact the forum on this issue is on FUCKING SUNDAY WHAT THE HELL ARE YOU PLAYING AT WOMAN!!!! ::ahem::)

I’m working on being less of a coward and starting to speak out more on controversial issues affecting PWDs. So I commented on this article, it’s just an edited down version of my earlier post on the subject, but it’s the first time I’ve commented about this sort of thing on a public forum that is read by a lot of ABs.

Because I am still trying to avoid actual work (although, thank god, all of the things that don’t involve actually talking to people can be done any time of the day or night - so I am of course doing them at night), including the newsletter that should have been done two weeks ago, here are some fabulous and/or funny links I have come across recently:

Teh Holiez Bibul: LOLCat Bible Translation Project

The Human Clock

50 Worst Songs Ever
Click the link at the bottom of the page for the worst album covers ever. Including two nauseating inthpirational cripple albums that are wonderful in their awfulness. One is for a singing group called “The Braillettes” with an album titled, “Our Hearts Keep Singing”. Betcha can’t figure out what at least two of the singers have in common... Fairly mild compared to: ::duh, duh, duuuuuuuuh!!!:: “The Handless Organist, Truly A Miracle Of God”. Yup, she is a double arm amputee, how *did* you guess? The one that gets my vote for BEST album title of all time is “All My Friends Are Dead”, with a picture of a man crouched in front of a grave with a bible in his hands. And my personal favourite - an album by The Minister’s Quartet, four middle-aged, badly dressed men, with the title “Let Me Touch Him”. I nearly inhaled my tongue laughing!

I quite like the one with all of the naked young men - well half naked at least - with their arms cozily around each other, they look very relaxed and happy.

http://observer.guardian.co.uk/uk_news/story/0,,2185322,00.html?gusrc=rss&feed=11

“A pioneering policy is breaking an old taboo by encouraging disabled teenagers to form sexual relationships, with help from carers if necessary”

“Jan Symes remembered every detail of the scene. A 17-year-old girl with straight brown hair pulled back into a ponytail, heavy purple boots and clothes ill-suited for her age sat opposite her in a small office at Treloar’s College, near Alton in Hampshire.

The teenager had cerebral palsy and was sitting in a wheelchair, using a machine to speak. She lifted her head, looked across at Jan and asked: ‘Do you think it is all right for me, as a very disabled person, to fancy someone?’ Symes was horrified. ‘Will society think it is disgusting?’ the girl went on.

Today the college for physically disabled teenagers over 16 goes public about a ground-breaking ‘sexuality policy’ that began to take shape that day two years ago, when a young woman shocked her counsellor by asking whether she had the right to fall in love.

A policy was designed that aimed to break down one of society’s most enduring taboos: that of disability and sex. And now, for the first time, staff are ready to speak out about the controversy, legal wrangling and heated debates involved in producing a three-page document that fundamentally changed the ethos of the college. Students, it stated, not only had the right to pursue sexual relationships, but would be assisted physically and emotionally by specially trained staff.

Now other colleges for the disabled are looking to make a similar change. Like Treloar’s, they have young people whose disabilities are so severe that even to hold hands, cuddle or kiss is impossible without help.”

The Sunday Times October 7, 2007
http://www.timesonline.co.uk/tol/news/uk/health/article2603965.ece

Disabled 15 year-old girl to lose womb

Doctors are preparing to remove the womb of a disabled teenager
because her mother fears she will not cope with the complications of
adulthood.

====================================================
The Sunday Times October 7, 2007
http://www.timesonline.co.uk/tol/news/uk/health/article2604771.ece

Keep my daughter a child, pleads mother

Every year Alison Thorpe sees her daughter’s life getting tougher. A
victim of severe cerebral palsy, the 15-year-old is too big for
pastimes that used to bring her joy.

----------

OK. For those who don’t know. I am a woman with cerebral palsy. Many of the women on my friendslist have cerebral palsy, ranging from mild to severe forms. Many of the women with disabilities I have known in my life have also got cerebral palsy, ranging from mild to severe forms.

In view of this, I feel I *am* qualified to comment, despite what the parents of this girl, and of Ashley X, would like to think. Many of the activists fighting against this invasion of bodily integrity are women with disabilities, and/or people with CP. We live with the realities of disability every single day of our lives. We do know what we are talking about. There are other options. These families act like they are the first to ever deal with children with disabilities growing older. Bullshit. Thousands of families have been there before, and have not resorted to such drastic measures. They have found ways of coping. And if they are not coping, they need to be given support. Funding for assistance, for workshops on menstruation management for caregivers, noninvasive medical alternatives. Women with disabilities, including those women with severe forms of disabilities have the right to whole bodies, bodies that are not carved into for no medical reason other than to make life convenient for caregivers, or to spare people from the awareness that PWD do grow up, and become adults.

Oh, and just for the record - reducing someone’s external sex characteristics (ie amputating both breasts, as happened to Ashley X), does not, and never will reduce the risk of sexual abuse. For gods sake, babies, infants, toddlers, pre-pubescent children of both sexes, ablebodied and disabled, are abused in horrifying numbers. Mutilating someone’s body is never the answer - especially when it would never be countenanced for ablebodied children.

And by the way, there is no such thing as a ‘victim’ of cerebral palsy. It is not some horrible spectre deliberately stalking people. It’s just there. It’s not the worst thing in the world - more than a few aspects of it can be difficult, depending on circumstances, but practical and emotional support, and being treated with dignity and respect, can go a long way towards living a good life. And needing assistance with toileting and other personal care tasks is not inherently undignified or degrading - unless people around you behave like it is.

One night all I had in the kitchen that was appetising was some smoked salmon, an avocado and some eggs, so I Googled to find out what I could do with those ingredients. This was the recipe I found:

Soft Scrambled Eggs with Smoked Salmon and Avocado

Ingredients:
8 eggs
3 Tbsp. heavy cream
2 Tbsp. unsalted butter
Freshly ground black pepper and sea salt
2 avocados, peeled and cut in slices
8 slices smoked salmon
Chopped chives (optional)

Preparation:

Crack the eggs into a bowl. Add the cream and whisk until the eggs look foamy and light.

Heat a 10-inch nonstick skillet over medium heat. Melt the butter until it foams; then turn the heat down to low and slowly pour in the eggs. Using a heat-resistant rubber spatula, slowly stir the eggs from the outside of the pan to the center. Once the eggs begin to set, stirring slowly will create large, cloudlike curds. This process takes about 10 minutes. It sounds easy, but perfect scrambled eggs that are soft and custardlike with no brown color are the sign of a really good cook. Season the eggs with a few cranks of black pepper and good salt, like fleur de sel. Serve with a few slices of avocado and smoked salmon, maybe a little chopped fresh chives.

---------

It’s more of a breakfast meal - but I’m not a morning person and really shouldn’t be around sharp knives and hot stoves when I’ve just woken up, so I usually have it as a light dinner. It’s very delicious. I don’t usually like scrambled eggs, grew up with the ‘stir the shit out of a couple of eggs, chuck them in a pan and stir until they are hard and crumbly’ method, and also had mass-produced powdered egg scrambled eggs at school camps and holiday camps. Gag.

I found the following on an email list I lurk on.  There was no link or any other reference, this is the entire speech.

------------

This was a speech made by Pulitzer Prize-winning author, Anna Quindlen
at the graduation ceremony of at American university where she was
awarded an Honorary PhD.

"Books say: she did this because. Life says: she did this. Books are where things are explained to you; life is where things aren't. I'm not surprised some people prefer books. Books make sense of life. The only problem is that the lives they make sense of are other peoples' lives, never your own."

Gustave Flaubert

It's Saturday, and some head banana of a large non-profit umbrella org that my group is a member of thinks it's acceptable to ring me at home on a fucking Saturday to insist that I call him back so he can ask my opinion on changes to the membership structure. (I gather they are ringing around all members) He called this past Wednesday and instructed me to call him at home in the evening.  No.  Night time, not work time.  Tired.  Do not give a shit.  Not giving a shit on Saturday either.  It's not life and death.  (New membership fees are shit - too high for small orgs.)  Call during business hours on fucking week days, and I will answer or call you back.  If you stop reminding me of my batshit insane workaholic father.  It's Saturday!!!!!  You twerp!!!!   I have the forum tomorrow and I am exhausted.  It has been a very long week.  People suck.  My life sucks.

Couple carry out campaign of sadistic abuse

Just something else to echo in my brain when I have to listen to some dipshit tell me that "No one would ever hurt a child with a disability", or, "But their (your) parents must love them (you)".  Denial like that enables horrors like this to happen.  It's ironic, or just fucking infuriating, when you think about it.  Able-bodied people are automatically assumed as being capable of good parenting, and the saccarhine crap that gets spouted about how `amazing' they are if they do have a child with a disability is endless, even if there is evidence to the contrary.  But have a disability and have a child and you're automatically assumed to be incompetent in a parenting role, often with no evidence of incompetence.  I've heard story upon story from other women with disabilities I know who've been questioned and attacked for having children, simply because people won't get past their prejudices. 

It is some very small comfort to notice that nobody who is commenting on the story has so far trotted out the usual justification of abuse that many stories about the abuse and/or murder of people with disabilities get.  The one where the supposed difficulty of having or taking care of a child with a disability justifies the murder or abuse.  That was one I heard personally applied to my own story, too many times told, "But you don't understand, it's so difficult to have a child with a disability."

Meanwhile, the difficulty of actually being subjected to abuse is something that they will not acknowledge.  Believe me, there is nothing in the world that is harder than living with the knowledge that your own parents abused you, that they didn't see you as human or worth protecting.  The little girl in that story will go through hell dealing with the afteraffects of what was done to her.  Living with cerebral palsy is a walk in the park, in comparison.

For my fellow Harry Potter fanatics...

http://news.yahoo.com/s/ap/20070201/ap_en_ot/people_rowling

"LONDON - "Harry Potter and the Deathly Hallows," the last of seven installments of the boy wizard's adventures, will be published July 21, author J.K. Rowling said Thursday.

Rowling announced the publication date on her Web site."

Counting down!

splodgenoodles has details about a petition to put a vital medication for people with Crohns disease on the Pharmaceutical Benefits Scheme that will make it more affordable. Splodge talks about the benefits for Crohns sufferers in general and herself specifically, please read her post (if only for her nostalgic introduction - ah, memories! ;-) ) and sign the petition. http://splodgenoodles.livejournal.com/414515.html

Thanks!

I think most of the Aussies on my FList are also on Splodge’s and have seen this, but if you’re not, please pop over there for this. (Just read/friend her anyway if you haven’t, she’s very smart and very cool!)

-----------
Just won another Antonio Banderas DVD on Ebay - $0.99 plus postage - wacko!!! My early birthday pressie to me!

It’s cooled down here now, thank god. Question, does excessive heat affect the performance of one’s refrigerater? I’ve had mine turned right up for the last few days, it’s not as cold in there as it usually is.

I'm going to get my purple cane!!! Yepyepyepyep! After all my storming around last week I remembered Technical Aid for the Disabled, a non-profit that adapts and creates assitive technology for PWDs that doesn't already exist. Contacted them, and even though it's just a cosmetic thing rather than a functional necessity, they've agreed to do it. Spoke to the volunteer who will do the painting, just now, and he should be able to do it next week! Wheeeeeeeeeeeeeeeeeeeeee! Purplepurplepurplepurple!!!!!!!!!

For other Australian gimps on my FL, there is a branch of this organisation in nearly every state, if you need something to make your life easier that can't be found in the usual ways, or if you need adaptions to equipment you already have - they are the ones to go to - and they usually only charge for materials, and depending on your situation, that may be funded through Home and Community Care (HACC) services, so you may not have to pay anything. Linky - http://www.technicalaidnsw.org.au/about/tadAu.html They also have cheap computers and internet - probably not needed by anyone reading this, but if you know anyone in Aus with a disability who would benefit from being online, but can't afford it - pass on the info.

As they are a non-profit, they are always needing funding, so if anyone wants to donate to a good cause at any point, I'm sure they wouldn't turn you down!

Purple!!!!!

It's 35 degrees celcius today, so I'm going to lie down on my bed and try not to melt into a puddle...

I’ve just created a new blog at Blogspot. Just because. :-)

This is where I’ll be reposting what I’ve written here and elsewhere in the past on disability, activism, abuse, books and life in general that is more polished than my “woe is me” posts here and is suitable for a more public viewing. There will hopefully be some newer writings along with links to articles, other relevant blogs and blog carnivals. Feel free to comment on and link to these posts.

I’ll still be using this blog as much as ever, of course, but the new one will be my more ‘public’ image.

By way of azhure

Holiday Love Meme, Secret Santa Style! My entry is here Click back to the link to the original post for an explanation.